Digital Health: An Opportunity to Advance Health Equity for People With Disabilities

Tags:
Early View Perspective
Topics:
Health Equity Health IT

Policy Points:

  • Universal Design and Inclusion: Mandate all digital health platforms, devices, and services be built on universal design principles and codeveloped with people with disabilities, ensuring compatibility with assistive technology and emergency response features.
  • Standardized Disability Data Collection: Implement mandatory, standardized disability data collection in electronic health records with robust privacy protections, addressing the Patient Protection and Affordable Care Act Section 4302 gaps while enabling personalized care and research.
  • Accessibility as Civil Rights: Treat accessibility as a civil rights issue with strict enforcement of Section 508, Americans With Disabilities Act, and Section 1557, including the patient interoperability mandate, penalties for noncompliance, and legal recourse for patients.
  • Funding and Incentives: Establish funding incentives prioritizing disability equity, digital literacy programs, value-based payment models, and workforce training for healthcare professionals using disability-inclusive digital health tools.

Throughout the last 50 years, the disability rights movement has made significant progress in providing statutory protections for people with disabilities in the United States. The passage of landmark legislation, including the Rehabilitation Act of 1973, the Individuals with Disabilities in Education Act (passed in 1975), and the Americans with Disabilities Act (ADA; passed in 1990), has created a foundation for disability advocates to fight against discrimination and for the expanded rights of the more than 67 million people with disabilities in the United States. In the health care context specifically, there have also been statutes passed to protect patients, including the Health Insurance Portability and Accountability Act (HIPAA; passed in 1996) and the Affordable Care Act (ACA; passed in 2010), that have helped to provide privacy and coverage protections for all patients, including people with disabilities who may have disproportionately frequent contacts with the health care system.

open access

Citation:
Jain P, Jain B, Doshi R, Jain U, Claypool H, Aboulafia A, Swenor BK. Digital Health: An Opportunity to Advance Health Equity for People With Disabilities. Milbank Q. 2025;103(4):0828. https://doi.org/10.1111/1468-0009.70049.