The Milbank Memorial Fund is an endowed operating foundation that publishes The Milbank Quarterly, commissions projects, and convenes state health policy decision makers on issues they identify as important to population health.
We focus on a number of topic areas identified by state health policy leaders as important to population health.
The Center for Evidence-based Policy at Oregon Health & Science University is a national leader in evidence-based decision making and policy design.
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We publish The Milbank Quarterly, as well as reports and issues briefs on topics important to population health.
June 2006 (Volume 84)
June 2006 | Carol Levine, Steven M. Albert, Alene Hokenstad, Deborah E. Halper, Andrea Y. Hart, David A. Gould
Policies promoting home- and community-based services and disease management models implicitly rely on family care, still the bedrock of long-term and chronic care in the United States. The United Hospital Fund studied family caregivers of stroke and brain injury patients when home care cases were opened and closed and found that even with short-term formal services, family caregivers provided three-quarters of the care. Patients’ mobility impairments and Medicaid eligibility were the main factors in determining the amount and duration of formal services. Between one-third and one-half of family caregivers reported being inadequately prepared for the case closing. At all stages, family caregivers expressed significant isolation, anxiety, and depression. Therefore, home care agency practice and public policies should provide better education, support, and services for family caregivers.
Author(s): Carol Levine; Steven M. Albert; Alene Hokenstad; Deborah E. Halper; Andrea Y. Hart; David A. Gould
Keywords: family caregivers; home health care; transitions; Medicare; Medicaid; stroke
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Volume 84, Issue 2 (pages 305–331)
Published in 2006
Routes to Better Health for Children in Four Developing Countries
The Transition from Excess Capacity to Strained Capacity in US Hospitals