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June 1999 (Volume 77)
Quarterly Article
Rebecca Dresser
March 2024
Mar 11, 2024
Feb 27, 2024
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Members of Congress and officials of the National Institutes of Health face heightened pressure from public advocacy groups seeking more funding for research on specific health conditions. In response, Congress and the Institute of Medicine have urged the NIH to create more opportunities for the public to participate in decision making on allocation of biomedical research resources. The ethical and policy implications of including advocates in the deliberations are explored, leading to the conclusion that public participation could contribute to more defensible decisions under three conditions: public participants are fairly selected and meaningful opinions are solicited; public participants look beyond their narrow constituencies to consider the health needs of the broader public; and NIH officials develop materials to assist participants with their deliberations.
Author(s): Rebecca Dresser
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Volume 77, Issue 2 (pages 257–274) DOI: 10.1111/1468-0009.00133 Published in 1999
