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September 2011 (Volume 89)
September 2011 | Diane E. Meier | Featured Article
Context: A small proportion of patients with serious illness or multiple chronic conditions account for the majority of health care spending. Despite the high cost, evidence demonstrates that these patients receive health care of inadequate quality, characterized by fragmentation, overuse, medical errors, and poor quality of life.
Methods: This article examines data demonstrating the impact of the U.S. health care system on clinical care outcomes and costs for the sickest and most vulnerable patients. It also defines palliative care and hospice, synthesizes studies of the outcomes of palliative care and hospice services, reviews variables predicting access to palliative care and hospice services, and identifies those policy priorities necessary to strengthen access to high-quality palliative care.
Findings: Palliative care and hospice services improve patient-centered outcomes such as pain, depression, and other symptoms; patient and family satisfaction; and the receipt of care in the place that the patient chooses. Some data suggest that, compared with the usual care, palliative care prolongs life. By helping patients get the care they need to avoid unnecessary emergency department and hospital stays and shifting the locus of care to the home or community, palliative care and hospice reduce health care spending for America’s sickest and most costly patient populations.
Conclusions: Policies focused on enhancing the palliative care workforce, investing in the field’s science base, and increasing the availability of services in U. S. hospitals and nursing homes are needed to ensure equitable access to optimal care for seriously ill patients and those with multiple chronic conditions.
Author(s): Diane E. Meier
Keywords: palliative care; hospice care; Patient Protection and Affordable Care Act; health care quality
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Volume 89, Issue 3 (pages 343–380)
Published in 2011
Enriching Patient-Centered Care in Serious Illness: A Focus on Patients’ Experiences of Agency
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